Im a ONCE in a lifetime girl !

DON'T GO RUNNING FOR THE HILLS - IT'S OK - LOL - IT'S OK -
OMG - Why do i always find MYSELF telling OTHERS it is going to be OK - it's ridiculas
BUT - Most people see me and think to themselves -
" RUN BULLS EYE RUN, RUN FOR THE HILLS "
- Sorry for Toy Story Quote so early on - but yes - this is where a lot of my Blogs will end up - with kid like Humour / terrible puns and LOTS OF SINGING !! ....

OK = Start at the VERY beginning - Ohhhhh - Noooooooooooo

Do- A deer, a female deer
Re- A drop of golden sun
Mi- A name I call myself
Fa- A long, long way to run
So- A needle pulling thread
La- A note to follow so
Te- A drink with jam and bread

That will bring us back to Do, oh, oh, oh


Yes - I will burst into song WHENEVER the need arrives !! - Where ever - Who ever - and How ever the mood takes !!

Maybe i should NOT have called the Blog - THE SERIOUS SIDE - 
because that's one thing i can't be - serious !! 
BUT - THAT'S ALL IN MY DEFENCE - that is MY WAY OF DEALING with LIFE !

OK - I have been Diagnosed with ( and i'm gonna simplify this as best i can .... ) 

The Left Side of my Pituitary Gland is 'Bulky' - Meaning - It is a mass of Tumour ( Don't all start jumping and screaming - Tumour is just another name for a lumpy mass !! ) 
IT IS NOT CANCER .... 
On the Stalk of the Pituitary Gland - i have another Nodule of Lumpy mass but this is just small !! 

NOW - This is where i sort of differ from many - 





Sometimes these grow - and sometimes they shrink !!
Sometimes they give off a Surge of Hormone - Either Cortisol or Adrenaline - or both !

Sometimes they Hit certain parts of my brain making me say or do 'odd' things - 
BUT THIS IS NEVER TO BE MISREAD ... 
I have been known to do 'odd things' when perfectly well and happy also ;) !! - 
That's just the way i roll - 
( ohhh great example - when i am well - i love to roll down hills !!!! 
ALWAYS REMEMBERING NEVER TO ROLL WHEN MOBILE PHONE IS IN POCKET - ALWAYS GIVE THIS TOO A RESPONSIBLE ADULT IN CHARGE - 
that's not usually EVER me ;)  ! ) 

OK - so - The Pituitary Tumours have Knocked out my Thyroid Gland - causing my body to gain HUGE amounts of weight - Weight that i have absolutely have NO CONTROL OVER - and boy have i tried !! - but - over this last year - not worrying or stressing about it - NOTHING has changed - so - i know that i am not in control of my Metabolic Rate and my 'Size' - So - Unlike many others - i have been able to EMBRACE who i am - and actually Thank Christ - hold weight bloody well and am SHHHHHHHHEXY with it. I CONSTANTLY get told to 'walk' more or 'eat less / healthier' Neither of which i can - 



BECAUSE

(1) Exercise causes my head to stop working - 
     I get EXTREME PAIN, head literally stops my legs / arms / co-ordination / memory /             Thought process / Speech working and i then ' STORM '

A 'Pituitary' or a 'Thyroid' Storm is where - my thyroid is producing too much of the two hormones mentioned above. This causes all of my cells to work too quickly. 
For example, my respiration rate and heart rate will be higher than they normally would. 
I even speak far more quickly than i usually do - and don't get me wrong - i can talk for England - but when 'storming' - I could wear out an entire room !! 
Other Symptoms could inc - 
A racing heart rate (tachycardia) that exceeds 140 beats per minute, and atrial fibrillation
high fever
persistent sweating
shaking
agitation
aggressiveness
restlessness
confusion
lrregular periods 
diarrhea
unconsciousness

So - This issue with the Thyroid,  ON TOP of a Pituitary Issue can get very interesting and exciting for everyone - cause - it is not just a invisible illness sufferer that has to deal with this - it seriously is EVERYONE - Friends / Family / Neighbours 

OK - The Pituitary Gland - The pituitary gland is sometimes called the "master" gland of the endocrine system, because it controls the functions of all the other endocrine glands. 





This "Master Gland" role makes the pituitary gland VERY important, despite its small size, and in fact it's a gland that runs your entire body - so - it's not difficult to understand that your whole body can be affected.
There are Many and Varying symptoms for Pituitary Issues - but mine first started with the 'knock out' of my Thyroid gland - 

After that i had a HUGE range of Symptoms - and to this day - almost 15 years on - I still have signs of each and every symptom listed ! 

Headaches - Just behind the eyes - causing IMMENSE pain ... 
( This can happen for no reason whatsoever ! ) 
EXTREME Tiredness / EXHAUSTION - 
No Sleep Patterns, 
Restlessness, 
Loss of Body Temperature Control, 
Loss of feelings in feet, Occasionally fingers - 
EXTREME Itchiness all over
Loss of eye sight
Blurry Vision

Giddiness upon standing and walking
EXTREME pain when doing ANYTHING
EXTREME mood swings, 
Suicidal thoughts, 
Constipation, 
Difficulty finding words - 
Muscle Loss in mouth - leading to loss of teeth !
'Zoning out'  where can literally lose hours of the day 
Unable to express thoughts verbally, 
Unable to relax
Lack of Concentration
Loss of Memory
OMG - EXTREME IRRITABILITY ALWAYS !!!! - 
ohh then there is the 'Hump' at the back of my neck - OMG - and this gets painful !! 

                                                  You can kinda see it on this pic !!

I am finding it harder and harder to walk - because of the concentration it needs to make sure my legs actually move - then i look down and that starts my eye sight to go blurry and my head to go giddy - I OFTEN have to grab hold of things to stop myself falling..

I also trip over fresh air !!! Which - Can be very very irritating - esp if you grab hold of a chair as you go down - only to find a 6ft - 20 stone body builder on top of you- and you don't even know his name - let alone what he is doing there !! Morrrrrrrrrrnin !! 

So - as you can see - Life is interesting !!! 
I have a lot to deal with. I don't want sympathy though - 

that's the worst thing - because - believe it or not - i do actually love who i am now - and help loads of people - so - i'm far nicer now - than before !!
At 42 - I DON'T want to be dependent on my - over 21 (!) mother .....  - 
I also don't want to be housebound - but - as i won't go anywhere without someone - in cause i 'flip' - and i can't drive anymore because lights and movement of my head can cause me problems - plus 'rude' drivers may well have an interesting lesson learnt if i get hold of them !

https://gofund.me/bc695050

Wow - and i have not even begun to cover the Emotional or Psychological side yet - but there's time for that another day !!!